Fibromyalgia

So since making the lifestyle change to live healthier, I have had the opportunity to meet some amazing people. One of those people is a workout friend Cassandra. Now she was always smiling in Zumba class and brought so much fun. Unfortunately, she has not been able to go to Zumba class for months now because she lives with fibromyalgia. On May 10th, she had one request, that we wear purple in honor of National Fibromyalgia Awareness Day. I honored her by wearing purple, That day I just happened to be going to court for a case and had another co-worker going also who had on purple. People asked if we coordinated and it gave me the opportunity to tell them why I was wearing purple. When I stated that I was wearing if in honor of National Fibromyalgia Awareness Day they looked at me stunned because they did not know what fibromyagia is. So I decided to write a blog on it.

May 10 National Fibromyalgia Awareness Day

The National Institute of Arthritis & Musculosketetal and Skin Disease defines fibromyalgia as “a common & chronic disease characterized by widespread pain, diffuse tenderness, and a number of other symptoms.” Other symptoms include cognitive problems, sleep disturbances, morning stiffness, headaches, irritable bowel syndrome, painful menstrual periods, numbness or tingling of the extremities, restless leg syndrome, temperature sensitivity, and sensitivity to light and sound. It is estimated that 5 million Americans 18 years old and older have fibromyalgia, with 80-90% being women. The causes of this disorder is unknown, diagnosis requires ruling out other disorders, and it is difficult to treat. Research has found that stress exacerbates this disorder and it takes a team of healthcare professionals to treat it. Current research focuses on understanding the pain and improving symptoms of survivors who live with this disorder daily.

I am proud of my friend, Cassandra, and the grace she shows in living with this chronic disorder. She continues to smile and encourage others everyday. Her spirit is a testament to those of us who live without chronic medical conditions. Cassandra thank you for giving me this opportunity to bring awareness to fibromyalgia and for being a inspiration to me.

Bleachers

So one of the things that occurred during the mission trip in Jamaica is we have a banquet and dance at the end of the week to promote positive interactions between the opposite sexes. Every year there are issues that come up on both sides that we address in the gender specific sessions. This year I taught the male sessions. During one of the sessions, I asked the gentlemen how was it going getting a date for the dance. Boy did the hands go up! The first question I got was “Why do the girls not want to talk to bleachers?” Now the previous day some of the counselors had approached me and informed me that there were several males who were bleaching their skin. They discussed how they believe that the youth were trying to be like the Jamaican music artist Vybz Kartel who openly has admitted that he has bleached his skin. So I knew what they were talking about, but I was thrown off by the boys direct questioning. The young man went on to say that it is like the girls think they are going to turn into an alien or something. I explained that anytime you are doing something that is outside of what is considered normal in society, you have to be ready to explain and defend your decision. I explained that they have to be comfortable in their decision and feel comfortable talking about it. I was hoping that they would talk about their choice, but no such luck.

Later that day, I went and talked to the girls to get their view on the issue. The response that I got from the girls was “why would we talk to someone with low self-esteem? If you are not comfortable with who you are and you are bleaching your skin, then you have low self-esteem. I don’t want to talk to them.” Bravo to the young ladies for having standards that they are not willing to compromise on. So, I go back to the boys and deliver the girls’ response and they are adamant that they do not have low self-esteem and they do not bleach their skin because of Vybz Kartel. And again they do not give their reasons leaving me to wonder.

This interaction got me to thinking about the deep rooted issues of skin color and how growing up we were taught that light-skin is better. I even asked the boys I work with in group if that was something happening mainstream here in America and they looked at me like I was crazy. Today, I caught up on shows on my DVR and finally watched “Light Girls” that debuted on the OWN Network in January. It was a follow up to the “Dark Girls” documentary that aired in 2011. Both of these documentaries do a good job of discussing growing up dark skinned versus light skinned in America. In was shocked that the “Light Girls” documentary included as a segment on skin bleaching. They discussed how this is a phenomenon that is bigger in other countries, but did not interview any celebrities that have admitted to bleaching their skin to get their view. I Googled skin bleaching and I was surprised by the products that popped up. There were also articles on the issue and even discussed celebrities that have admitted to or are being accused of skin bleaching. This is another layer of body image issues that our youth face today.

While skin bleaching is not mainstream in America, it is still an issue that needs to be discussed and added to the list of body image issues. We have to continue to have conversations not just about the beauty of body shapes, but also the hidden messages about skin color. I hope that this is not something that will become mainstream in America.

skin-lightening

#ALSIceBucketChallege

I am sure everyone has seen the #ALSIceBucketChallenge that has taken social media by storm. Well I was finally challenged after commenting that one of my friends cheated on his. LOL I wonder how many people actually understand and know about ALS. So as a part of my challenge, I am dedicating a post to ALS. 

ALS stands for Amyotrophic lateral sclerosis and is also called Lou Gehrig’s Disease. It is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. The motor neurons die, which causes a person’s brain to no longer be able to communicate with the parts of their body to initiate movement. The progression of this disease can lead to person becoming totally paralyzed and eventually leads to death. There are three forms of ALS: 

  • Sporadic – the most common form of ALS in the United States – 90 to 95% of all cases.
  • Familial – occurring more than once in a family lineage (genetic dominant inheritance) accounts for a very small number of cases in the United States – 5 to 10% of all cases. There is a 50% chance that offspring will develop ALS in this form. 
  • Guamanian – an extremely high incidence of ALS was observed in Guam and the Trust Territories of the Pacific in the 1950’s.

ALS is diagnosed through a series of tests:

  • electrodiagnostic tests including electomyography (EMG) and nerve conduction velocity (NCV)
  • blood and urine studies including high resolution serum protein electrophoresis, thyroid and parathyroid hormone levels and 24-hour urine collection for heavy metals
  • spinal tap
  • x-rays, including magnetic resonance imaging (MRI)
  • myelogram of cervical spine
  • muscle and/or nerve biopsy
  • thorough neurological examination

Symptoms of ALS include: 

  • muscle weakness in one or more of the following: hands, arms, legs or the muscles of speech,
    swallowing or breathing
  • twitching (fasciculation) and cramping of muscles, especially those in the hands and feet
  • impairment of the use of the arms and legs
  • “thick speech” and difficulty in projecting the voice
  • in more advanced stages, shortness of breath, difficulty in breathing and swallowing.

Check out what living with ALS is like from this video. It starts off as a parody, but gets very serious after the ice bucket challenge. Click Living with ALS He is such a brave young man for doing this video and sharing it with the world!

Because ALS does not affect a large number of people (in the pharmaceutical world) and pharmaceutical companies are not able to make a lot of money (because it does not affect a large number of people), there is not a lot of funding for research. The ALS Association raises money to assist patients and to fund research for treatments and cures. Please visit ALS.org to make a donation. 

So now I present the video of my #IceBucketChallenge! In the video I challenge people to either donate to ALS.org, to donate to a charity of their choice, or to donate to my mother who is walking as a Survivor at the St. Petersburg #LightTheNight Walk to raise money for the Leukemia & Lymphoma Society.

Click here for the video: Dr Shan Walks ALS Ice Bucket Challenge

 

Will you participate for justice?

Sorry no posts for a couple of weeks, but I have been so tied up with a new position. I have struggled over the last 36 hours trying to decide if I would make a statement about the Trayvon Martin verdict. I have watched, read, and listened to news outlets, friends, and family give their different opinions about the case. I will admit that I was not surprised by the verdict, but I am still sadden by it. I am urging like so many that no violence occur behind this. I urge people to find peaceful and appropriate ways of dealing with this. People are demanding change and I agree. There are a number of cases out there that are very similar to the Trayvon Martin case. I feel that there needs to be a deeper change in the way that our judicial system is currently run. I have listened to people discuss how they are going to move to another country as if that solves anything. Other countries are faced with oppression in some form. We need to deal with the issue, not run from it. What strikes me is some of these people making these claims are people who do not participate in our system. They refuse to vote, get involved in advocacy, and are the first ones to try to get out of jury duty. When will we stop complaining and start participating? When will we realize that in order to make change we have to participate and be consistent in our participation. Having two parents who grew up during the Civil Rights movement and took me to go vote with them for every election I was excited to sign up to vote when I turned 18. Since earning my undergraduate degree in policy studies I have a greater appreciation for how policies are created. Before voting, I make it a point to investigate all aspects of the ballot; not focusing only on the candidates, but also the referendums and policies. It is my hope that people not only participate in the protests for Trayvon Martin, but make it a point to fully participate in all other areas of our legal and government systems. 

 

Please make a donation in support of my efforts with Team In Training and help advance the research for cures. You can access my fundraiser page at http://pages.teamintraining.org/sun/StPeteHf13/drshanwalks. Furthermore, I would like to invite family and friends to join me in St. Petersburg that day after the race to celebrate a survivor, my mother Shirley Dorsey-Davis. Feel free to contact me for more details.